A place to spread awareness and vent out my emotions.
Please visit http://www.marfantrust.org/
oh what a beautiful picture! she makes a lovely fairy princess!very happy to meet you too! who all in your family has mfs?~ maya @ marfmom
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Hi! I'm a new follower :) I found you through the link you posted on the wall of the 'We support people with Marfan's Syndrome and their families' group on Facebook :) I'm 19 and have the same condition! :) I was diagnosed when I was 3 so have known pretty much all my life... I have read all your posts so far and also understand about autism, as my ex of 2 and a half years had it, as well as his two brothers who are very seriously affected. You sound like a very strong lady! I think this is a great way of getting through things, and I'm looking forward to reading what else you have to say. I'm happy to help in any way I can!You have a very beautiful daughter :) she looks really happy and I love her tutu!
Thank you so very much! What a lovely message to recieve :) Thank you for following *hugs*